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How do you find the words to describe the most horrific event in your life, your personal valley of the shadow of death ? because that is exactly the feeling that clamps your heart when you are at a place where the medication needed to rescue your child is out of reach.
Found on CNN 6 years ago
I wish to God The Foltzes knew nothing about catastrophic epilepsy and Acthar, the Foltzes heart has always been to protect other families from going through hell, emotional and financial, that The Foltzes did.
Found on CNN 6 years ago
When your infant's body is being racked by 40 seizures every single day, you do not have three business days to play Russian roulette, waiting for a medication that could stop his seizures and right your world again.
Found on CNN 6 years ago
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