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When we first took her home, we were in newborn bliss. Just absolutely in love with her. She was a great baby, but we started to realize her movement was declining. She had trouble breathing and eating. When she was five weeks old, she was diagnosed with spinal muscular atrophy.
Found on CNN 4 years ago
It's critical she gets the( treatment) as soon as possible, it won't be able to reverse any damage that's being done to her right now, but it will give her the gene she needs to live.
Found on CNN 4 years ago
The impact this has had on our lives has been so drastic, welcoming a child into the world changes your life, but this has turned it upside down. We have no idea what the future holds for Van Doormaal said.Until Lucy, or if we will be able to raise enough money to just keep Van Doormaal said.Until Lucy alive.
Found on CNN 4 years ago
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