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Carmen Heron, who is speaking out on behalf of her daughter, who is now legally deaf because of SJS, said.I get emotional even thinking about it. Im just so excited for her. She is still dealing with the aftermath of SJS now, and I do worry and think, Is this the life shes going to have ? But now, its not shell have a new life as a mum. For Heron, who was an apprentice chef at a top Sydney restaurant when she became ill, but can no longer work, life changed forever in early 2014, when she was diagnosed with epilepsy. Right away, she was placed on two drugs commonly prescribed to help manage seizures levetiracetam, more commonly known as Keppra, and lamotrigine, sold under the brand name Lamictal. It took three weeks in the hospital before her condition started improving, although she still deals with lasting hearing loss and PTSD from the ordeal. ( PA Real Life) While serious side effects are extremely rare, both drugs carry the risk of triggering a severe cutaneous adverse reaction - such as SJS according to The National Institute for Health and Care Excellence( NICE). At first, Heron appeared to be responding well to medication, until a pinprick-like rash appeared in May. I knew right away that it was an allergic reaction, and so I took her to the doctor and asked them to change the medication she was on.