“

With extra weight. It's just my feet feel terrible all the time, it is really difficult to do something every day when you know it's going to be painful and your body tells you to stop, but Hasti has a rare condition, and there's not going to be a treatment unless we create it because there are no investments from pharma, from governments. These conditions need parents to advocate for their kids. And if I don’t keep taking steps, there's not going to be a treatment for CDLs.