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Citizen Quotes Page #160

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It’s pretty impressive she’s walking so many holes out here, she’s a trooper, i really do n’t know what to say. She’s had a rough last year with Grandpa passing away, and we have an uncle that’s pretty sick, and I ’m just happy that we’re able to kind of enjoy all this together.

Richard Heathcote/Getty Images Scheffler

Found on CNN
1 year ago

I do not recognise any authority, any value, higher than democracy.

Kenzaburo Oe

Found on CNN
1 year ago

By exercising collective self-defence, Japan will directly participate in a war, i’m afraid that Japan’s spirit is approaching its most dangerous stage in the past 100 years.

Kenzaburo Oe

Found on CNN
1 year ago

What we are dealing with is something evil, a terrorizing disease that makes us watch our baby suffer, never being able to do anything to truly save him, it is killing us all slowly and it won’t stop killing us until we have a treatment.

Mary Saladino

Found on CNN
1 year ago

Henry is the love of our life, he is a beautiful child inside and out. I don’t want to imagine a life without him in it.

Mary Saladino

Found on CNN
1 year ago

AHC is the worst disease I have ever worked with in terms of the level of stress, for both parents and physicians. Episodes can strike at any time, and it is not readily clear when an episode is going to be catastrophic and require a hospital visit or urgent intervention, they have to reconsider everything.

Kathryn Swoboda

Found on CNN
1 year ago

For his exact mutation, if you think about DNA, you have two copies of everything. He has one good copy and one abnormal copy. Not only is his bad copy improperly functioning, it’s also preventing the healthy copy from functioning properly, a knockdown ASO would target the abnormal copy of the gene, by preventing it from turning into the abnormal protein, without affecting the healthy copy.

Christelle Achkar

Found on CNN
1 year ago

Pharmaceutical companies aren’t as interested in helping if there’s a much fewer number of cases, so when you’re talking about an ultrarare condition like AHC, it’s not going to be profitable for pharma.

Kathryn Swoboda

Found on CNN
1 year ago

If Mary – and Henry – can prove that an ASO works in an AHC patient, they will be providing a tremendous service to the entire community, mary is taking on an incredible burden of risk, and much of the burden of cost, for Henry but also on behalf of the other patients in our community.

Nina Frost

Found on CNN
1 year ago

When you’re feeling that fear you’re going to lose your child, you have to be thinking what would I want to give him as his mom if this is it? I want him to hear how much we love him, but also oh my God, I have to save him, what’s his oxygen level? Do I need to resuscitate him? Did I give the first dose of rescue medication? it’s an unbelievable amount of trauma and it’s going to happen over and over again, no matter what we do, until we develop this treatment.

Mary Saladino

Found on CNN
1 year ago

While Mary is driving the bus, the AHC community is working together to support the effort, if Mary – and Henry – can prove that an ASO works in an AHC patient, they will be providing a tremendous service to the entire community.

Nina Frost

Found on CNN
1 year ago

I think he’s still young enough to benefit, but if he has to wait another five years it might be too late to make a substantial difference, you’re going to completely change his destiny. We have to do something.

Kathryn Swoboda

Found on CNN
1 year ago

It’s like your power goes off in your house and you have a backup generator, but your backup generator isn’t working so well, we see the disease manifest at moments when Henry’s tank is running low. It could be when he’s too hot, tired from climbing upstairs, or he’s hungry or his brain was working too hard during therapy.

Mary Saladino

Found on CNN
1 year ago

There’s beauty in that, those moments of in between, if we are having a good day or a good hour, and it’s a beautiful sunny day, we’re going to spend it at the beach or lake and be grateful for even one or two hours he doesn’t experience an episode, it’s beautiful and brutal at the same time. Every single thing that Henry does or endures, it feels miraculous and terribly tragic at the same time.

Mary Saladino

Found on CNN
1 year ago

While this is about Henry, it is also about many other patients whose lives can be impacted by this therapy.

Christelle Achkar

Found on CNN
1 year ago

The biggest risk is unpredictable side effects, but that’s why so much time and money is being spent on pre-clinical drug development to test for all potential toxicities until we can be as sure as possible that it is safe for Henry.

Christelle Achkar

Found on CNN
1 year ago

There will always be cases where we forget our (reusable) bags at home. We should try not do that but when we do, we need to buy a bag. And if we then have already too many durable bags at home, it would be better from a climate perspective, at least, to buy a single-use paper or plastic bag.

Tomas Ekvall

Found on CNN
1 year ago

It is a problem that the LCA results are seemingly easy to understand, but it takes an expert to understand how the results were calculated and why they are different.

Tomas Ekvall

Found on CNN
1 year ago

The people in the faith community are very grateful for Trump and his presidency but their loyalty is to one, and that’s not Trump, it’s to God, it’s not just people of faith – Americans are looking to turn the page. There’s a point where people are just exhausted with former President Trump.

Bob Vander Plaats

Found on CNN
1 year ago

There’s no drama in our administration, there’s no palace intrigue. (My staffers) basically just sit back and say, ‘OK, what’s the governor going to do next?’ And we roll out and we execute.

Ron DeSantis

Found on CNN
1 year ago

The defense ministry and coast guard administration are actively understanding the relevant progress and situation.

Chiu Tai-san

Found on CNN
1 year ago

In addition, heavy rain and snowmelt may lead to renewed( more widespread) flooding from Monday to Tuesday, particularly in low elevations and shallow and warming snowpack areas.

The National Weather Service

Found on CNN
1 year ago

The river is now surrounding some RVs and mobile homes. It’s really unbelievable.

Danny Housh

Found on CNN
1 year ago

No one’s gonna be foisting off clunkers on good friends and allies, this is about really having the type of stealth and the type of reach which the strategic environment requires.

Democrat Congressman Joe Courtney

Found on CNN
1 year ago

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